Pacientes com câncer: o impacto da sobrecarga do cuidador informal na qualidade do cuidado

Abstract

Objective: Understand the care routine undertaken by informal caregivers of people with cancer assisted in a philanthropic institution, and the self-reported overload. Method: This is a qualitative descriptive study that was carried out with 12 family caregivers of cancer patients who are assisted in a philanthropic institution located in a municipality in the northwest region of Paraná. The collection took place between May and June 2022 and took place through a semi- structured interview at the referred institution, during the family's stay. For this purpose, an instrument was used that contained a survey of the socioeconomic profile, clinical history of the family member with cancer and guiding questions. All data obtained were recorded, transcribed in their entirety and later analyzed according to a thematic approach, originating three meaning study units. Results: The thematic units made it possible to verify that there were significant changes in the life of the family caregiver, changes permeated by emotions, conflicting experiences and coping strategies adopted by each caregiver. It was possible to identify impacts on health and strain on interpersonal relationships, but without changing the way of caring for the sick family member. Conclusion: Being the main caregiver of a family member with cancer can change the caregiver's daily life, health and family structure. However, it’s clear that despite the difficulties, perseverance and empathy are maintained permeating the care process.