Diabetes mellitus tipo 1 em crianças e adolescentes: a perspectiva do familiar frente ao diagnóstico – estudo de caso

Abstract

Objective: To know the changes that occur in the daily lives of family members, faced with the child/adolescent’s DM1 diagnosis. Methods: This is a case study conducted with family members of children/adolescents with DM1 diagnosis, attended at the Basic Health Units in Maringá. Data collection was performed in the first semester of 2021, the family members were submitted to interview using a semi-structured questionnaire, with the guiding question: “Faced with the diagnosis of DM1, what is your biggest difficulty/concern in the face of changes and how do you feel emotionally?”. Then, the content analysis was addressed. Results: Three family members of children/adolescents between 8 and 17 years old with DM1 participated in the study. Four analytical categories emerged in the content analysis: “Characterization of the 4 target audience”; ‘Discovery of the diagnosis: Diabetes Mellitus type 1 and understanding about the disease”; “The care process: the family living with the disease”; and “Challenges experienced by caregivers”. Final Considerations: The person with DM1 as well as their family member must be assisted and followed by a multidisciplinary team, especially by the nurse, as this keeps a bond with the family member and the care provided to the patient according to the needs of this family. As an outcome, making the family feel more confident and secure when taking care of this child/adolescent with DM1.